The links on the following page, are here for your use and the use of anyone you know, with this horrible fate. I don't pretend to be organized, as I haven't had the opportunity to list them alphabetically. I do however know, that I have copied every link I have read, and provide them here for you. My doctor's and I joke that, I am an amatuer neurologist. I can tell you based on my history with the medical profession,
I know more about the disease, then most I have met.

The information is provided here so that we all as a community, can share the information we need to survive. Please, I can't encourage you more to email this page to the many others who may find this information useful. If you have anything to add to this page, please feel free to email me. Also, If you encounter a broken link, I would like to know that too.

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