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ALS Awareness and Advocacy...
It seems that every day when I arise in the morning with hope and determination,
it's the American Government's job to take it away. When hope and prayer are the only
things you have left, they are hard things to lose.
I should be inffused with
anger the way I have been treated by the federal and Ocean County governments.
I am here to tell you that not only does discrimation exist in the country,
most of the time it is the law or government policy.
A very wise person, showed me how to turn my aggrivation and anger into passion
and detemination and I am very thankful for this gift. My courage and determination
are terrific assets for use against a government that could care the less.
I remain a strong advocate in the fight for a cure for ALS, but I am more determined
to change the laws regarding how the Social Security Administration treats the
disabled as a people.
This past April, I appeared before members of Congress to tell my story and the
stories of others with this horrific disease. I plan on returning to Washington DC,
when I can raise the needed funds, and again next April with the ALS Association.
I continue to write members of Congress to this day, and I am looking to raise
needed funds so I can pay the postage to get my story out to all the 538 members
that currently serve us in Congress.
Pictured to the left, I appear in Washington DC, with Jon Hunter.
Jon Hunter has a unique story, just as I.
Jon was diagnosed with ALS and given a life expectancy of 3 to 5 years to live
and was denied his Social Security because right now he walked to well.
Below are some links to articles and letters I have written to raise the level
of awareness in this country and to invoke change, long overdue.
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